<Tre's Updates>

Saturday, March 31, 2007

Use To Be Impossible

I have some relief now that we’ve started sprinting. This is just the beginning but at least we have a starting point. I can remember last year in July when he went into RD (respiratory distress) and they increased his ventilator settings significantly. A fellow in CHOP told me that not only did he see my son being vent dependant for the rest of his life but he couldn’t see him on minimal support again. That was then and this is now. My baby has been doing things that many thought we’re impossible. Anything is possible through Christ and NOTHING is impossible.

He’s a happy baby: ticklish, funny, and lovable. Although he’s trached, he has his own signature laugh. If anyone was to see how much he cracks himself up, I can almost guarantee followed laughter. When he’s happy, I’m happy. Sometimes we just laugh at daddy together or even laugh at each other.

We are working hard on his feeding skills and trying to get him to put pressure on his legs so he’d be able to walk and/ or stand. Right now he has a huge piece of equipment in the middle of his room (taking up a lot of space) that is supposed to keep him in a standing position. This is so he’s use to the position. He’s strapped in over his chest, his stomach, and both legs. He HATES it. I’m a bit teary eyed when I see him in this device because he looks so helpless and of course no one wants their child to have to go through that. If that isn’t bad enough he also has a new pair of leg braces. He doesn’t wear them often though; just during therapy.

He had another appointment yesterday. Yes, I know. We had to get his G-tube placed, though. We showed up an hour late and the nurse was annoyed with us. She said, “You’re late. Next time can you call and be a little more considerate. I mean you WERE late.” I gave her a quick uh huh/ yeah and Vic and I continued on. We’ve had to wait longer for them before and that long trip to get there wasn’t comfortable.

The doctor though his site looked GREAT and whatever we’ve been doing she’d like us to continue.

posted by Tre's Mom @ 3:03 AM

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