When we got there we had no idea where to go and who to speak with. From the administration department we were tagged (parents get hospital bands) and sent to the PICU. We were hoping that he didn't have to share a room because of germs and privacy issues and to our surprise (prayers LOL) he was in a single room. The nurse assigned to Tre had no idea why he was there nor did the Attending Physician. Awkwwwward! We explained or situation and gave a history then quickly started settling in. The doctor came in to alert me that she had NO idea that we were coming and needed a little time to investigate. Just as I started to undress him into comfortable lounge wear a nurse came in to let me know that he was in the wrong area of the hospital. So I redressed and stuffed the rest of is things in his bags and went to the other end of the hospital.
I have to admit, once we got settled in I wasn't worried for a bit. I don't think I was being cocky or anything but come on here, this IS Tre` here. LOL Just kidding. Vic and I felt confident that he'd pass this test because he has been doing so well.
So initially he was supposed to go in on the 27th and come back home on the 29th. The doctor was concerned because he was coughing and wheezing a lot in the morning (which is so typical for Tre whether he's on or off the ventilator.) so he decided to keep him for one more day. It wasn't something Vic and I expected but being that they don't care for him day after day we understood.
We were anxious to finally get him back home so when we got to the hospital we expected to pack up and go...until his nurse said, “so, the doctor might want to keep him one more day.” “No, he isn't! Why?!” Sh said the doctor wanted to watch him because he received three albuterol treatments for wheezing. “Okay soooooooo what has he been doing DIFFERENT from the time we walked him the door? I want to speak to whomever thought he was staying another day.” That person never came. However his pulm did. He thought he was okay to go a long time ago. Apparently the doctor didn't want to speak to b directly so he discharged him and sent his pulm for discharge orders. Tre` has a bit of a cold which can account for SOME of his coughing and wheezing. Staying in the hospital wouldn't change that because he showed everyone he can handle it without crashing.
In the end, he did great! Tre` is still of course trached but o longer vented. Our next step is to visit ENT December 27 (I remember the date because it was the day I went onto bed rest).
He's down three pounds because SOMEONE was stubborn and wouldn't eat anything by mouth for his nurses. That's another story!
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Hi Dwana! So glad to hear Tre is doing well!! Ahh..the dreaded Dec 27th..day of pPROM and bedrest..ugh..One day we will share forever, huh?!?
Yay for Tre!!! :)