Soooo this is surgery/ procedure number 14 for Tre and I'm a nervous wreck for more than one reason. First, HELLO it's surgery. Second, I'm worried about possible infection, side effects, and his discomfort. I’ve heard people talk about eating ice cream, etc. Well, this kid doesn’t like ice cream! The closest thing I’d have to give him is Italian ice (he shares RARELY with his dad) or yogurt.
He was always able to bounce back after a procedure earlier on but they were also so close together. I recall a time where he didn't cry with shots/ immunizations and later his world was caving in if he saw a needle. WTH. This is a child that would bump his head and act as if nothing happened. NOW, when he bumps his head he is so emotional.
He's due for a tonsillectomy on the 23rd. After his bronc it was discovered that he had 2+ tonsils and very minimal scar tissue (which caught everyone by surprise.) The scar tissue was so insignificant that she may not bother with it during surgery. Children and adults with trachs will have some scar tissue but with Tre's history we expected a lot more. He still occasionally pulls at his trach and it's rushed back in but obviously without damage. We were told that he will be there overnight or longer. I’ve been so nervous about this that I haven’t been able to function.
This is a very important procedure. His ENT doctor believes that it will improve his chances of kicking the tracheostomy. She attempted to cap (The cap is designed to facilitate tracheostomy tube weaning and voice restoration. These caps are intended for use with fenestrated or uncuffed tracheostomy tubes only. ) him in her office but was unsuccessful. He was working too hard for anyone’s comfort. In his defense, dad and I knew he was ready but Tre` had JUST started a cold. He was congested days before his appointment.
So we're at #14 and sadly there's more to come. We'll cross that bridge when we get there...not before.
GLAD to see an update! I was wondering whats been going on!!! I'll be thinking of you all and hoping the surgery goes smoothly....whats the status with the trach? I haven't been on any boards in ages...so I am out of the loop!